I have no intention of making this blog a place to complain about my health issues. However, sarcoidosis is so poorly known that I feel obligated to educate people about it. I recently blogged about sarcoidosis and this time I will share a different side of my experience.
Most people have not heard of sarcoidosis. If they have, they likely think of it as a lung disease. I have even heard a doctor describe it as a lung disease.
Sarcoidosis is not a lung disease.
Sarcoidosis is often thought of as a lung disease because the lungs are the most likely place for it to attack and that is the way many people are diagnosed. The first step in my diagnosis was a routine x-ray of my lungs that showed something wrong. Sarcoidosis in the lungs is called pulmonary sarcoidosis. That is what I have.
But that is not all.
This week I have been suffering from sensitivity to light. With it being sunny and snowy, it has been a bad time. Even indoors I have experienced pain. I have had this before and I have known that there are traces of sarcoidosis in my eyes. However, I was stubborn and didn’t do anything about it.
Until this morning. When I got up this morning, there was a bright light like a flash in the middle of the sight in my left eye. All around that light was a white fog. When I covered my right eye, I could hardly see anything. That was enough to cure me of my stubbornness. I went to my optometrist, who sent me to an ophthalmologist at the hospital. Sure enough, my eyes were not doing well. The pressure on my eyes was about twice the maximum of what it should be. The doctor confirmed that the sarcoidosis is in my eyes. This is called ocular sarcoidosis. I now have that too.
No need to panic though. I am on drops that should take care of it fairly quickly. The bad news is that the doctor confirmed that this will happen regularly because of the sarcoidosis.
I share all this to say that sarcoidosis is not just pulmonary sarcoidosis. Sarcoidosis is ocular sarcoidosis and many other kinds as well. In fact, sarcoidosis was first discovered as a skin condition (hence sarc, Greek for flesh).
In conclusion, repeat after me:
SARCOIDOSIS IS NOT A LUNG DISEASE.