So this has not been a great weekend for me. As I recently blogged, my sarcoidosis is now active in my eyes and is causing quite a bit of pain. In addition, the sarcoidosis is flaring elsewhere in my body. My chest hurts, my back hurts, my hip hurts, my knee hurts, my ankle hurts. To be honest, my cane is leaning up against me as I write this post. There are other things that are going on as well, including some issues with one of our children who is dealing with mental illness. It really has not been easy.
Regarding my health, we are being forced to face the reality of my sarcoidosis and what that means to our family. What the future will look like, I do not know, but Amanda reminds me that I am not the same person I was before I got sick.
That brings me to my good news. Yes there is good news in all this. My good news is Amanda. She has been such a support through this journey. I have read enough stories of people with sarcoidosis who have spouses that just don’t understand sarcoidosis. They expect them to just “suck it up” and act like there is nothing wrong.
Amanda gets sarcoidosis. She knows more about it than I do. She is a tremendous support to me. I really could not do this on my own. It is much more than just her putting drops in my eyes every two hours, although I appreciate that. It is how she understands what I am going through and shows support in a thousand ways.
I want to take this opportunity to thank Amanda and to tell her how much I love her.
I love you babe!
(I will also take this time to point you to her blog)