Light in Darkness

So this has not been a great weekend for me. As I recently blogged, my sarcoidosis is now active in my eyes and is causing quite a bit of pain. In addition, the sarcoidosis is flaring elsewhere in my body. My chest hurts, my back hurts, my hip hurts, my knee hurts, my ankle hurts. To be honest, my cane is leaning up against me as I write this post. There are other things that are going on as well, including some issues with one of our children who is dealing with mental illness. It really has not been easy.

Regarding my health, we are being forced to face the reality of my sarcoidosis and what that means to our family. What the future will look like, I do not know, but Amanda reminds me that I am not the same person I was before I got sick.

Stephen and Amanda Bedard
Me and my beautiful wife

That brings me to my good news. Yes there is good news in all this. My good news is Amanda. She has been such a support through this journey. I have read enough stories of people with sarcoidosis who have spouses that just don’t understand sarcoidosis. They expect them to just “suck it up” and act like there is nothing wrong.

Amanda gets sarcoidosis. She knows more about it than I do. She is a tremendous support to me. I really could not do this on my own. It is much more than just her putting drops in my eyes every two hours, although I appreciate that. It is how she understands what I am going through and shows support in a thousand ways.

I want to take this opportunity to thank Amanda and to tell her how much I love her.

I love you babe!

(I will also take this time to point you to her blog)

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2 thoughts on “Light in Darkness”

  1. Hello Stephen: Your post was just read by me and I want to wish you the very best in your battle with this disease and with the care that you both give to your children.

    As you may know, Linda and I are spending the winters in Florida. Five weeks ago I tripped and broke 3 bones in my ankle. I have actually admonished myself for complaining because, in reality, it will heal.

    While hospitaglized I received two separate visits from my neighbours across the street. On their second visit they asked if I would mind if they cotuld say a prayer over me. Tears came to my eyes when I realized how many very good people are out there. And from the little I know, I do know that you and Amanda are among them.

    Once again, all the best, and, if I may, I will say prayers for all of you.

    Uncle Fred & Linda

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